Ataxia UK

Ataxia is the name given to a group of neurological disorders that affect balance, coordination, and speech. There are many different types of ataxia that can affect people in different ways.

Ataxia UK works in two main ways: We fund research into finding treatments and a cure for ataxia, and we support people through our range of services.

Services we offer include:

Our Helpline which is open Monday - Thursday 10.30 - 14:30

Ataxia UK runs a variety of online support networks, and is creating more all the time. You can read about our online channels below, and see how to join our networks.

  • The 16-30’s project is an online-based network that gives young people across the UK with ataxia access to specialised support, information and advice. This is done through a stand-alone website and blog, as well as a closed Facebook group (email Steph Marley at communications@ataxia.org.uk to request to join). Members of the project contribute to the blog, sharing their stories, building connections and friendships along the way.
  • HealthUnlocked is a social network for health and wellbeing-based discussions. By finding others with similar health backgrounds, people can take on day-to-day health concerns together; and because the communities are set up by leading health organisations, people have access to credible support. Visit the designated Ataxia UK page and be sure to follow our community.
  • Your Blog - As part of our online support network, we have created a blog just for you: the ataxia community. Here you'll find advice and information from experienced members of the charity; fundraising stories from our wonderful fundraisers; support, stories and reflections on living with ataxia, or information about hobbies / extra-curricular activities people with ataxia have enjoyed.
  • Twitter - The Ataxia UK Twitter feed is a great place to access the most up-to-date information we find about ataxia, disability news and relevant information from other neurological research charities. Stay up to date by following us.
  • Facebook page and closed groups - Ataxia UK hosts a range of Facebook groups such as Parents of people with ataxia Facebook group, 16-30’s Facebook group, Parents with ataxia Facebook group, Volunteers Facebook group - to support people with specific needs. You can join any of these closed groups by emailing Steph Marley at communications@ataxia.org.uk
  • Instagram channel! - This platform is Ataxia UK's informal community space for everyone affected by ataxia, our Friends, supporters and staff. Following our Ataxia UK Instagram channel is your chance to see a bit of what goes on ‘behind the scenes’ at Ataxia UK and to get to know all of us in the office a little bit better. You can also follow Hope the Bear on her travels, as she treks across Britain to attend events, labs and staff meetings!

Who to contact

Telephone
Helpline: 0845 644 0606
Email
helpline@ataxia.org.uk
Website
Ataxia 

Where to go

Address
12
Broadbent Close
London
Postcode
N6 5JW

When is it on?

Date & Time Information
Mon to Thu - 10:30 - 14:30

Journey Planner

Address: 12,  Broadbent Close,  London, 

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